Autoimmune Registry Monthly Webinar

The Autoimmune Registry will host a monthly webinar to bring together patient advocacy groups related to autoimmune diseases. To attend this webinar, please register below.

Details: Thursday, May 23rd from 12-1 pm ET via Zoom.

Agenda:

12:00 - 12:05: Convene

12:05 - 12:10: Introductions

12:10 - 12:40: Encephalitis411: Fighting Encephalitis Head On

12:40 - 1: TBD

Speakers

Becky Dennis has served as the board president of Encephalitis411 since its founding and serves as a patient advocate through speaking engagements and informative patient/caregiver sessions. As a survivor and an “Expert by Experience,” she consults with patients in their diagnosis and recovery journey to provide guidance. She is also the author of the book, “Brain Wreck.”  She was an active member of the former physician-led International Encephalitis Consortium that published several scholarly articles about encephalitis.

​Becky has served on multiple nonprofit boards throughout her tenure, including Encephalitis Global, The Turning Point and LifePoint. She is also a former guest lecturer on entrepreneurism and journalism with the University of North Texas.

​In her business career, Becky was a business development and marketing consultant. She was most known for building, launching, and executing programs that fuel growth in global companies. Becky’s strong business acumen was developed in professional services companies where her leadership roles included chief marketing officer, senior vice president of influencer relations, and vice president of business development and marketing. Even in a volatile economy, Becky’s visionary approach produced exceptional results for her employers, including closing more than $9 billion in total contract value during her career.

She is now focused on improving awareness, striving for improved advocacy, and helping support research initiatives for encephalitis.

Aaron is an entrepreneur with 35 years of experience in software development, the last 15 focused on healthcare and medical research. He was co-founder of Recombinant Data, a software company that implemented database technologies for academic medical centers. Recombinant was acquired by Deloitte Consulting in 2012.

In 2013, his mother was diagnosed with Sjögren’s syndrome. He learned that it was autoimmune and witnessed his mother’s experience of waiting for 10 years before she was correctly diagnosed. He decided to build a registry for autoimmune illness, modeled on the National Cancer Registry, to improve diagnosis by gathering statistics and research on this important class of disease.