What are your symptoms for autoimmune hemolytic anemia?
Autoimmune hemolytic anemia (AIHA) is a condition where the immune system mistakenly destroys red blood cells, leading to anemia. This can occur in warmer or colder temperatures depending on the type of AIHA a patient has. Recognizing the symptoms of the disease is crucial for early diagnosis and effective management.
Based on data from the NIH's All of Us* program, common comorbid conditions/symptoms include high blood pressure, high cholesterol, shortness of breath, abdominal pain, and chest pain.
Based on surveys from our own registry, 82% of patients reported fatigue, followed by 28% reporting dizziness, and 22% reporting lightheadedness, dark urine, rapid heart rate, and more. To add your data to the registry, enroll at www.autoimmuneregistry.org/register.
What are your most difficult symptoms? Please forward and share this email to help us gather more statistics on autoimmune hemolytic anemia. Don't forget to also check out our clinical trial opportunities here.
To support the Autoimmune Registry, please share our information with others who have autoimmune diseases. Donations are also greatly appreciated!
*The All of Us Research Program is supported by the National Institutes of Health, Office of the Director: Regional Medical Centers: 1 OT2 OD026549; 1 OT2 OD026554; 1 OT2 OD026557; 1 OT2 OD026556; 1 OT2 OD026550; 1 OT2 OD 026552; 1 OT2 OD026553; 1 OT2 OD026548; 1 OT2 OD026551; 1 OT2 OD026555; IAA #: AOD 16037; Federally Qualified Health Centers: HHSN 263201600085U; Data and Research Center: 5 U2C OD023196; Biobank: 1 U24 OD023121; The Participant Center: U24 OD023176; Participant Technology Systems Center: 1 U24 OD023163; Communications and Engagement: 3 OT2 OD023205; 3 OT2 OD023206; and Community Partners: 1 OT2 OD025277; 3 OT2 OD025315; 1 OT2 OD025337; 1 OT2 OD025276. In addition, the All of Us Research Program would not be possible without the partnership of its participants.
