Research participation
Why Participate in Research?
40% of clinical trials fail because researchers cannot find enough patients to participate. Without patients willing to participate in clinical research, we cannot find new drugs, new diagnostic tests, or new treatments. Your participation counts!
The Autoimmune Registry helps recruit patients like you for clinical research and clinical trials. When a trial begins, we contact you to see if you can participate. You won’t be able to participate in every study, but every study you participate in gets us a step closer to the tests, treatments and cures for autoimmune disease.
To see a list of clinical trials we are recruiting for, visit here. If you have any questions about participation in clinical trials, please contact us.
Suppose we have a drug that could cure Lupus…
Today, it would take 2 years just to find patients to test it.
Imagine if we could find those patients in 2 days.
Learn more:
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ARI protects your data and your privacy:
We do not give your personal identifying data to anyone.
We contact YOU when there is a study you might qualify for.
You decide whether to contact the researchers.
We never send patient-level data to researchers.
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ARI does not share patient-level data unless you authorize us to do so in writing. We do share aggregate data, such as the number of people with a specific disease.
If you have received an email from us about a research study, it means we are telling you about the study. We have NOT told the people running the study about you.
We have not given them your email or your data.
That said, we encourage you to participate in research. It is the only way we can help scientists understand autoimmune disease and ensure new treatments are developed for patients.
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Your participation in the registry is completely voluntary. Our goal is to protect your data while connecting you to eligible clinical trials and research studies. You can find our Rules for Participation here.
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A copy of our data privacy policy can be found here.