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By enrolling in the Registry, you will be contacted when researchers are recruiting individuals like you for clinical research to fight autoimmune disease. Your participation is essential for this!

After you enroll, you can take surveys about the specific diseases you may have. You can log in and access your data at any time. You are also free to retake surveys to add on any new information. We regularly publish anonymized statistics on all autoimmune diseases using data from our registrants.

Contact us if you encounter any issues or want to find any particular statistics.

Meet our Registrants

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  • ARI protects your data and your privacy:

    • We do not give your personal identifying data to anyone. 

    • We contact YOU when there is a study you might qualify for.

    • You decide whether to contact the researchers.

    • We never send patient-level data to researchers.

  • ARI does not share patient-level data unless you authorize us to do so in writing. We do share aggregate data, such as the number of people with a specific disease.

    If you have received an email from us about a research study, it means we are telling you about the study.  We have NOT told the people running the study about you.

    We have not given them your email or your data.

    That said, we encourage you to participate in research. It is the only way we can help scientists understand autoimmune disease and ensure new treatments are developed for patients.

  • Your participation in the registry is completely voluntary. Our goal is to protect your data while connecting you to eligible clinical trials and research studies. You can find our Rules for Participation here.

  • A copy of our data privacy policy can be found here.