This year, the Autoimmune Registry has continued to work towards reducing the time of diagnosis, supporting autoimmune research, computing prevalence statistics, and establishing autoimmune disease as a major disease class.

Autoimmune diseases can arise from a combination of genetic factors and environmental triggers. Increasingly, research has focused on the role of environmental exposures, particularly air pollution, in developing these conditions.

Researchers hypothesized that there may be a hereditary risk for autoimmune diseases in women with primary ovarian insufficiency (POI). A recent study in The Journal of Clinical Endocrinology & Metabolism examined the link between autoimmune diseases and POI using the electronic health records of 610 women diagnosed with POI as well as their close relatives.

Receiving a misdiagnosis or having symptoms dismissed by healthcare providers are common experiences for people with autoimmune diseases.

Last year, we discussed how those diagnosed with vitiligo have a higher chance of having another autoimmune disease. However, recent research shows that there may be a correlation between vitiligo and hearing loss.

Our mission at the Autoimmune Registry is to establish autoimmune disease as a major class of disease through supporting research in hopes of reducing the time of diagnosis, gaining the attention of healthcare providers, and improving existing treatment protocols.

Based on a mouse model study, researchers at Emory University reveal a family of enzymes, particularly one called CU43, that can reduce the impact of these harmful antibodies in diseases like MG.

Every month, Autoimmune Registry hosts a webinar with our PAG members to provide them with a platform to present new research, innovations, and knowledge on autoimmune diseases. On October 23rd from 12-1 pm Eastern, our new Network member, Own MG, will have a presentation on understanding Myasthenia Gravis.

Autoimmune diseases are often thought of as diseases affecting adults and the elderly. However, there are various autoimmune diseases that can begin in childhood, such as juvenile idiopathic arthritis and juvenile dermatomyositis.

Autoimmune Registry is hosting a webinar on October 7th, 2024, at 4:00 pm EST to discuss new technologies used in autoimmune disease clinical trials. We wanted to take this time to introduce one of our presenters, Dr. Mamatha Pasnoor!

Autoimmune Registry is hosting a webinar on October 7th, 2024, at 4:00 pm EST to discuss new technologies used in autoimmune disease clinical trials. We wanted to take this time to introduce one of our presenters, Dr. Mazen M. Dimachkie!

Here at the Autoimmune Registry, we believe that sharing stories is important for bringing awareness to autoimmune diseases. The story below is from one of our registrants, Emily, who kindly allowed us to share her story.

This past June, a team of international researchers, led by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), uncovered a novel mechanism by which myositis autoantibodies contribute to disease progression.

Autoimmune hemolytic anemia (AIHA) is a condition where the immune system mistakenly destroys red blood cells, leading to anemia. This can occur in warmer or colder temperatures depending on the type of AIHA a patient has. Recognizing the symptoms of the disease is crucial for early diagnosis and effective management.

Fatigue is a common symptom among several autoimmune diseases and can, at times, interfere with daily activities. One autoimmune disease that has fatigue as a common symptom is myasthenia gravis.

September is Alopecia Awareness Month! Alopecia occurs when the immune system attacks hair follicles and causes hair loss, usually affecting the hair on one's scalp or face.

Inflammation caused by lupus can affect many different body systems such as the skin, kidneys, blood cells, brain, lungs, and heart. Because of the complexity of the disease, lupus has been difficult to study.