Myasthenia Gravis: Why Diagnosis Takes Years and How Patient Data Can Help
Myasthenia gravis (MG) is a chronic autoimmune disease that disrupts the signal between nerve and muscle, producing fluctuating weakness that can blur vision, slur speech, and, when it’s most dangerous, compromise breathing. It affects as many as 100,000 Americans.
Why does it take so long to diagnose such a treatable condition?
June is Myasthenia Gravis Awareness Month, and for a condition that quietly affects up to 100,000 Americans, it doesn't get nearly enough attention.
Does having a voice in your treatment actually improve how you feel?
A new study found that when patients get to weigh in on their own treatment decisions alongside their doctors, do they actually feel better?
What are the different types of lupus?
When most people hear the disease “lupus,” what comes to mind is only one version: systemic lupus erythematosus (SLE), the chronic autoimmune condition in which the immune system attacks the body's own organs.
Are women with lupus being left out of early heart disease prevention?
May is Lupus Awareness Month, and for those living with lupus, it's a moment to draw attention to a long-running gap in their care: the cardiovascular disease risk that often goes unrecognized until it becomes urgent.
Why does lupus look so different for different people?
May is Lupus Awareness Month and this week, we want to dedicate our newsletter to the many faces of lupus and the unique ways systemic lupus erythematosus (SLE) manifests across different communities.
Why does it take so long to finally hear the words "it's lupus"?
May is Lupus Awareness Month, and for the millions living with systemic lupus erythematosus (SLE), the diagnostic journey remains one of the most painful parts of the disease.
April is Sjögren's Awareness Month, but how many people have it and don't know?
An estimated 4 million Americans are living with Sjögren's disease, making it one of the most common autoimmune diseases in the country — and yet it remains one of the least recognized.
Could a common cholesterol medication also help lupus symptoms?
If you have lupus and you're already taking a statin for cholesterol or heart protection, there may be an additional benefit worth knowing about.
Could getting treated for your autoimmune disease also protect you from cancer?
If you live with an autoimmune condition like rheumatoid arthritis, lupus, or Sjogren's, a large new study has something meaningful to share: the chronic inflammation driving our conditions also raises cancer risk by about 32% compared to the general population.
Our new disease-specific insights are almost ready!
Along with the rollout of our new surveys for over 100 autoimmune diseases, we have also been working on new disease-specific Insights based on your survey responses. Here is a preview of what the Insights for our Sjogren's registrants will look like.
What did the autoimmune registry accomplish in 2025?
As March Autoimmune Awareness Month draws to a close, the Autoimmune Registry is proud to share our 2025 Annual Report, highlighting a year of growth and community engagement.
Celebrating March Autoimmune Disease Awareness Month!
March is Autoimmune Disease Awareness Month—a time dedicated to shedding light on the millions of individuals navigating the daily, often invisible, challenges of living with an autoimmune condition.
Autoimmune Registry Celebrates 10 Years of Impact & Announces New Executive Director
Autoimmune Registry marks 10 years of cross-disease research and announces Mette Dyhrberg as new CEO. Learn about our impact serving 15.5M Americans.
Could a Pregnancy Hormone Help Calm Autoimmune Inflammation?
A new study identifies a brain–immune signaling pathway that may explain why autoimmune disease activity sometimes improves during pregnancy, highlighting a molecule that could point toward future treatment strategies.
Could Existing Drugs Stop Autoimmune Organ Scarring?
Researchers at the University of Virginia have identified immune cells that drive scleroderma scarring. In lab models, targeting macrophages completely stopped fibrosis, opening the door to potential drug repurposing strategies.
Could Your Smartphone Predict Your Next Flare?
For those living with autoimmune diseases, the unpredictable nature of "flares"—sudden increases in joint pain, stiffness, and fatigue—can make daily planning a challenge. However, new research reported in ACR Open Rheumatology suggests that the device already in your pocket might soon offer an early warning system.
Why does joint damage continue in rheumatoid arthritis patients—even during remission?
Rheumatoid arthritis (RA) affects nearly 1.5 million Americans, with almost 5% of women over 55 living with this chronic autoimmune condition. While modern treatments have improved symptom management, many patients still experience continued joint damage even during remission. Yale researchers may have discovered why.
Could a New Therapy Replace Hours-Long IVIG Infusions?
Can air pollution trigger autoimmune disease?
Canadian researchers have discovered a troubling connection between air pollution and immune system changes associated with autoimmune conditions like lupus and rheumatoid arthritis.