This December, we have invited, Khaleelah Cohen, Health Equity Programs Consultant for Foundation for Sarcoidosis Research (FSR), to share her experience developing and launching the Ignore No More Initiative – a series of campaigns focused on improving health outcomes for Black patients with sarcoidosis. She will discuss how these campaigns were created and how “Ignore No More” evolved into a larger movement aimed at increasing access to clinical trials for Black patients living with chronic conditions. Khaleelah will also share lessons learned, practical strategies and insights for those looking to create similar programs and build impactful campaigns.

For December, we will look at the difference between clinical trial data and real-world data. We will discuss the differences between these data types and why both are important in understanding how treatments work, improving healthcare decisions, and advancing medical research. We will also take a look at clinical trial opportunities and real-world data registries for psoriatic arthritis.

The Autoimmune Registry meets with its network members to understand the autoimmune disease, Myasthenia Gravis.

For the month of October, we will focus on — and clinical trial opportunities for this disease. Join us as we invite our patient panel to discuss common questions surrounding clinical trials and participation.

The Autoimmune Registry meets with its network members to learn about how the Vitiligo Research Foundation uses AI in patient education and the launching of ARI's new website this September!

For the month of June, we will focus on rheumatoid arthritis and clinical trial opportunities for this disease. Join us as we invite our patient panel to discuss common questions surrounding clinical trials and participation.

The Autoimmune Registry meets with its network members to learn more about Encephalitis411 and the struggles of having an encephalitis diagnosis.

For the month of May, we will focus on plaque psoriasis and clinical trial opportunities for this disease. Join us as we invite our patient panel to discuss common questions surrounding clinical trials and participation.

The Autoimmune Registry meets with its network members to learn more about the challenges of Behçet’s and how comorbidity is a factor in diagnosing autoimmune diseases like Behçet’s.

The Autoimmune Registry meets with its network members to learn more about the connection between brain inflammation and mental health as well as the fear, uncertainty, and diagnosis of autoimmune brain disease.

The Autoimmune Registry meets with its network members to learn more about the connection between brain inflammation and mental health as well as the fear, uncertainty, and diagnosis of autoimmune brain disease.

The Autoimmune Registry meets with its network members to discuss Solve M.E./CFS Initiative’s “Solve Together” Real-World Data Platform as well as a recruitment case study for a marketing study.

The Autoimmune Registry meets with its network members to discuss the resources and programs Global Genes offers and Reggie's autoimmune disease journey.

The Autoimmune Registry meets with its network members to discuss the path to new treatments, clinical trials, and the importance of patient education.