The Autoimmune Registry hosts a monthly webinar to bring together patient advocacy groups related to autoimmune diseases. This month, we have invited Jenny Pagel-Guile, the Executive Director of The National Pancreas Foundation, to share how to leverage one’s medical professional partnerships for community education.
Details: Wednesday, January 22nd from 12-1 pm Eastern via Zoom
Agenda:
12-12:05 pm: Convene
12:05-12:10 pm: Introductions
12:10-12:40 pm: Leveraging your medical professional partnerships: Centers of Excellence, Fellows Symposium, and community education w/ Q&A
12:40-1: TBD
Jenny Pagel-Guile
Executive Director
The National Pancreas Foundation
Jenny has been in the health charity space for over 20 years, with organizations such as the Cystic Fibrosis Foundation, March of Dimes and ALSAC/St. Jude Children’s Research Hospital. She has worked closely with medical professionals and community partners to grow programs, services and awareness for orphan and uncurable diseases.
In addition, Jenny has a wealth of experience in fundraising in order to build a diversified revenue stream for NPF. She is passionate about cultivating relationships within the pancreatic disease community and fulfilling our mission to provides hope to those suffering from pancreatitis and pancreatic cancer. Her educational background includes a bachelor’s degree from Fort Hays State University and Master’s from the University of Memphis.
Aaron Abend
Executive Director
Autoimmune Registry Inc.
Aaron is an entrepreneur with 35 years of experience in software development, the last 15 focused on healthcare and medical research. He was co-founder of Recombinant Data, a software company that implemented database technologies for academic medical centers. Recombinant was acquired by Deloitte Consulting in 2012.
In 2013, his mother was diagnosed with Sjögren’s syndrome. He learned that it was autoimmune and witnessed his mother’s experience of waiting for 10 years before she was correctly diagnosed. He decided to build a registry for autoimmune illness, modeled on the National Cancer Registry, to improve diagnosis by gathering statistics and research on this important class of disease.
Aaron earned a BA from Middlebury College and an MBA from Columbia University. He has also taken courses at Stanford University’s Biomedical Informatics program.