Is there a new biomarker for autoimmune disease activity?
Autoimmune diseases are notorious for their lengthy diagnostic process. Patients often suffer for years without a diagnosis or are misdiagnosed, leading to delays in proper treatment.
Can early intervention alter the course of rheumatoid arthritis?
New research on rheumatoid arthritis (RA) has focused on the early stages of the disease when intervention may help prevent or mitigate the disease.
What is Lichen Sclerosus?
Lichen Sclerosus (LS) is a chronic inflammatory skin condition that causes patches of skin to look white, thickened, and crinkly around the genital and anal areas. While this condition can occur in both men and women, it is more commonly diagnosed in women.
What are the intersections between Women's History Month and Autoimmune Awareness Month?
Although March is Autoimmune Awareness Month, it is also Women's History Month. It is no surprise that these two celebrations coincide, especially since autoimmune diseases stand out as a significant and often overlooked aspect of women's health.
Join Us in Celebrating March Autoimmune Disease Awareness Month!
Every day, millions of autoimmune disease patients suffer in silence with what are often "invisible" illnesses. With March set as Autoimmune Disease Awareness Month, this is our time to advocate for our diseases and show the world who we are!
What can we do to raise awareness on Rare Disease Day?
The National Institutes of Health defines a rare disease as one that affects fewer than 200,000 persons in the US. But is every rare disease truly rare?
Today is World Encephalitis Day!
World Encephalitis Day occurs every February 22nd to raise global awareness for those who have been affected by encephalitis, a condition characterized by inflammation of the brain.
February is Black History Month!
In honor of Black History Month, the Autoimmune Registry is focusing on the intersections between health and identity.
How do we address the increased prevalence of autoimmune disease?
Autoimmune diseases pose a significant health challenge and it is estimated that you or someone you know will develop an autoimmune disease at some point.
Why do autoimmune diseases affect women more than men?
Autoimmune diseases are known for disproportionately affecting women, with 70-80% of those diagnosed being women. Recently, a study led by Stanford University sheds light on why autoimmune diseases are more prevalent in women than in men through a molecule called Xist (pronounced as "exist").
What are some ways autoimmune disease patients cope with their diagnosis?
Receiving an autoimmune disease diagnosis can be life-altering since it leads individuals into a challenging journey of managing their symptoms, receiving treatments, and experiencing the emotional toll of living with a chronic condition.
Autoimmune Registry Partnered with Story Booth to Create an Autoimmune Disease Stories Page!
Autoimmune diseases have long been under the limelight as a class of diseases. While cancer and heart disease statistics are often aggregated to show their impact, autoimmune diseases are rarely classified as a class.
What symptoms did you not realize were signs of autoimmune disease?
Autoimmune diseases can manifest in various ways, and some symptoms can go unnoticed or be attributed to other causes. Some common autoimmune disease symptoms are fatigue, joint pain and swelling, skin problems, recurring fever, and more.
What do we know about Long-COVID, Mast Cells, and Autoimmune Diseases?
It's been four years since the beginning of the pandemic and the medical community continues to struggle with the complexities of the lingering effects of COVID-19, also known as Long-COVID.
Start your year right with Journal My Health!
As we embark on a new year, many individuals are forming goals and habits that benefit their health and well-being, such as exercising, meditating, or eating healthier foods. Those with chronic illnesses may also have the goal of managing their symptoms.
Latest CAR-T therapy data shows promise in treating Lupus and other autoimmune diseases
Back in June, we discussed how CAR-T therapy may be used to treat various autoimmune diseases such as lupus and myasthenia gravis. Although CAR-T therapy is mainly used to fight cancer, researchers have been able to use this therapy to modify T-cells to attack B-cells that incorrectly produce antibodies that attack their own cells.
What has the Autoimmune Registry accomplished in 2023?
As 2023 draws to a close, we want to give everyone a recap of the past year. To raise awareness of autoimmune diseases, we wrote a blog post on autoinflammatory diseases for Global Genes and continued to expand our network by connecting with individual disease advocacy groups.
What is the Safe Step Act of 2023 and why is this bill important?
One of the first things a newly-diagnosed autoimmune disease patient learns about is called “step therapy” or “fail-first”. This forces patients to first try, and possibly fail, on lower-cost medications before the insurance company agrees to cover the medication originally prescribed by the patient's healthcare provider.
Do you experience flare-ups during the winter months?
Back in August, we wrote about how heat may affect those with autoimmune diseases. Unfortunately, the cold weather may also induce flare-ups for some autoimmune diseases such as arthritis, psoriasis, and lupus.
Track your symptoms with Journal My Health!
Many individuals with an autoimmune disease are told the importance of tracking their symptoms. For example, symptom tracking helps with the early detection of health issues, disease management, treatment effectiveness, and more.